Schizencephaly

Schizencephaly is a rare disease that affects the brain. It  means "split brain" because of the the absence of grey matter . It affects the different parts of your brain's clefts.  Doctors noticed that the babies with the disease have delayed skills such as speech and language skills . When they grow up, they are at risk of developing seizures or having fluid in the brain, a symptom  known as hydrocephalus.

I know a lot about this disease because I have it. Mine isn't as severe as some other people's. Some people are in wheel chairs and can't speak or communicate with others. I'm not in a wheel chair, but I have a talking disorder related to schizencephaly.  People have difficulty understanding me.  For instance, I could be asking a question and the teacher won't understand me, so I have to repeat myself multiple times. 

I've dealt with that all my life, but it still gets annoying  when I have to repeat myself  over and over again.  I encounter people who are inconsiderate . They see me as a disorder, not as the person I am. I've been called mentally retarded, a baby, and I've had people who try to mock my voice.  That is what really aggravates me. Disabilities aren't everything to a person's identity. It's not easy facing people who judge me based on my voice. 

Right now, there is no known cure for this disease, but with speech or physical therapy, you can improve step by step. I had to go through 13 to 14 years of speech and about four to five years of physical therapy. I face challenges day to day, dealing with learning and communicating with others. In another post, I will talk about ways to deal with bullying.
http://www.ninds.nih.gov/disorders/schizencephaly/schizencephaly.htm

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